Ey Wade's~ When Clouds Touch: immunodeficiency

“ I knew in my soul, I loved you before we ever met.”

Paisley has dreamed of this
connection all of her life. Held him in
every pulse of her heart. Glimpsed him from the corner of her
Eyes. Like wisps of the future - drifts from past.
Malachi chased her in his dreams ....
Across a life time. Seeing, but never touching.

And that’s how they lived life, continuously rushing past destiny.
Reaching for each other, only to have their steps redirected.

When clouds touch, it becomes an affair of the heart. Will the heart be strong
enough to accept the challenge?

When Clouds Touch is the embodiment of a story of soul mates, Paisley and Malachi.
Destined to meet since before birth, their story wraps us somewhere between loving and caring, wanting the best for someone, while wanting to see them happy, even when it is risky and they must obey the demands of family.
Paisley, a woman of Japanese decent, living with Albinism and heart disease, is meek, yet makes no apologies for seeking what she yearns. Hiding behind the protective fold of her wagasa, she yearns for freedom from her overprotective parents and the love of a man she's known only in her dreams, even at the cost of her health.
Malachi, a man who has visions of meeting an elusive shadow, uses his sense of humor and sensitive side to build their relationship. He's determined to win her love, even against the wishes of her parents.

~

Showing posts with label immunodeficiency. Show all posts

Get the Facts Right Before You Write- When Clouds Touch. #Albinism #AsianAmerican #romance

When Paisley and Malachi decided their story need to be told, I had no idea where it would take me. It began with me, riding as a passenger in a car, watching an abundance of fluffy clouds floating in the sky and spying two that seemed to hit and bounce away from each other. Grabbing my trusty notebook, I wrote this scene:

Crash Into Me

Two clouds, floating ever so slowly through the soft blue sky, one from either direction, moved closer on a path towards collision.

Angels, their beautiful song filling the air like a lullaby, sat serenely on separate pillows of softness, gently flapping their enormous wings to deflect the heat of the sun's rays from the cloud's tiny inhabitants.

The tiny souls, cuddled within the silken folds, glanced across the gap and in lightening recognition, they reached out. Before their chubby fingers could touch, thunder boomed and puffs from their guardian’s breath blew the clouds apart. Continuing in the same direction, yet inches apart, the angels resumed their soothing tunes.

For a couple of days, that was it. And on the third day, it all clicked. Paisley began to tell me her story. The fact she was hindered from having a peaceful, happy life because of the restrictions set on her by her parents. Their fear for her health and their strict observation of her relationship with the guy she loved. Paisley has an interview at In the Chair, which explains so much more.

The reactions of the parents are what really made me do a lot of research. Why were they so hard on her? Beyond the immune deficiency and heart issues Paisley has to deal with, she also had Albinism. The one thing I've truly taken from the research is, this is an ailment where the skin tone can be in every race/ethnicity, which proves racism is ridiculous and yet, people are still treated as an oddity and something to be feared or ignored. A shame.

I have to say, as a youth, I've known of people with the ailment, but didn't know them personally so writing about someone took a lot of study. I always want to get everything down as correctly as possible.So I went to my favorite search spot and dug in. Read many articles, looked at pictures and videos and feel really close to Paisley. Check out the interview we had at IN THE CHAIR.

I found health facts here and here, about the different types of Albinism, what causes it, genetics and so forth. Paisley happens to have Chediak-Higashi syndrome which accounts for her immune problems. is another rare form of albinism that is caused by a defect in the LYST gene.
Read a lot of other articles, mostly on the NOAH site. National Organization for Albinism and Hypopigmentation

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If you are interested or want to know about the challenges of Albinism, visit NOAH The National Organization for Albinism and Hypopigmentation.

If you have any questions or comments, you can e-mail at webmaster@albinism.org
If you know someone newly diagnosed, go here.
While on Instagram one day, came across this magazine.Albinism Beauty, features gorgeous models and informative articles, insight, pictures and stories of people living with Albinism. They also have a fundraiser geared to the protecting individuals being terrorized, attacked and murdered for their body parts.
Please , take a look. http://albinismbeautymag.weebly.com/home.html

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If you like this excerpt of When Clouds Touch, please take time to fill the survey..

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Enjoy this documentary of two African American brothers, one happens to have, Albinism. It's very interesting and shows some of the interactions they receive from classmates and the general public.

All publications by Ey Wade can be found at these locations. Go out and feed your reader!

http://inknbeanspress.com

inbox@inknbeans.com

Kindle , Smashwords , Sony or Kobo, Scribed

Nook and iPad here and; here.

Read interviews with the author

See Ey, Hear Ey at Various Venues Pinterest:

Your Love is Smothering Me. ~ When Clouds Touch #parenting

"Paisley, control yourself. We are in public.”

Her father’s blue eyes had darkened in his anger and she knew her window of making a point and winning the argument had been closed. Lowering her head in submission, she relinquished her determination in silence.

She may be of an adult age, finally living on her own, but she was still the obedient daughter Frankie MuRong had reared and she would not shame him by acting like a recalcitrant child.

“Fine, I’ll go with you, but I’m hungry, now.”

Backing away from his grasp, she shouldered the straps of her bag before stepping around him and into the enclosure of the revolving door.

As the doors went through their cycle, Paisley silently listened to her father’s biting voice as he called in an order to his favorite Asian restaurant. No one was safe from his expectation of perfection. She automatically moved to the right, opened her wagasa to shield her skin from the sun, before following the direction indicated by the pressure of her father’s hand on the small of her back. Her reaction no where near what she’d felt when Malachi touched her.Then she’d wanted to lean back and learn more about him, now, all she wanted to do was get away from her father.

Once in the car, she heatedly joined in the broadcast tirade between her parents.

“That’s not true. I wasn’t going to try and hide anything. I would have told you if you’d given me a chance.”

“Honey,” Her dad broke in. “She had the hair covering her forehead. I wouldn’t have seen,” He paused to reach over and lift her bangs, but Paisley pulled away. Not being thwarted, he continued his description. “There’s a silver dollar sized, angry red, purple and blue knot plastered in the middle.”

“I’d just come from the hairdresser, Oka-san. I had my hair cut into a new style.” Paisley immediately clasped her hands over her mouth, she hadn’t intended to let that part slip, knowing exactly how her mother would react. Now she would really hear it.

“You went to a dirty crowded, public salon?” Her mother’s shocked screech filled the car.

“Oh, my God!” She raised her voice above the level of her mom’s predictions of foreboding. “Oka-san, stop. I had bangs cut, that’s all. Nothing serious. It wasn’t near as bad as that. The place was beautiful, perfectly clean. No one so much as sneezed or coughed. You two worry too much.”

“Worry too much? You should see the dress she has on.” Her father exaggerated. “No sleeves, thin. As if she doesn’t know the sun will burn her. ”

Her parent’s yelling in unison was too much and she could feel herself becoming stressed.

“Stop. I was well hidden under one of the largest most expensive umbrellas ever. No sun touched me. Besides, I thought our goal was to finally let me live a normal life. People have accidents all of the time and they don’t die. It’s just a bump.”

“For other people maybe, but for you that’s another story. You know...”

“I know. I’m a person with an immunodeficiency.”

“And a bad heart..”

“A heart that hasn’t bothered me in months. An immune system which hasn’t failed me nor caught any illnesses in nearly the same amount of time. You two have got to let me grow up. To be in control of my own health.”

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If you are interested or want to know about the challenges of Albinism, visit NOAH The National Organization for Albinism and Hypopigmentation.

If you have any questions or comments, you can e-mail at webmaster@albinism.org

An outstanding magazine - Albinism Beauty, features gorgeous models and informative articles. Please , take a look. http://albinismbeautymag.weebly.com/home.html

I hope you enjoyed this excerpt and will answer questions on the survey.

This novel, and all novels by Ey Wade are AVAILABLE FOR PURCHASE and your support is appreciated. If you have read any of my novels, please post a review. Copy and paste it to any of the online book sites.
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A Beautiful Observation

"...this wordsmith artist now crafted a story of opposites who see each other before they are aware then reconnect when all odds are against them.
The writing is lyrical, the settings though seemingly ordinary, extraordinary. Yet this reader was moving along so swiftly to discover what would happen moment by precious moment that only now can I admit that this author is an immense talent.
As if I were to step into a room to view a priceless Monet of words, I stand in awe of her work! I know that in reading each book, you will discover that it is uniquely a one of a kind rhapsody composed by this gifted author who carved out the notes as a sculpture would if they were instead a writer.
Yes, if Michelangelo were an author, I believe he would have read ‘When Clouds Touch” and wish he had written this novella!"

~ Paula Rose Michelson